Public advocacy

Giving a voice to the rare — and moving policy to answer.

Order the Genie is a specialist in public advocacy and care for rare and serious conditions. We work at the policy level, in public-private-partnership mode, to advance therapy access, recognition and support — with deep expertise across Spinal Muscular Atrophy, Haemophilia and Cancer care.

Where our expertise runs deep

Three conditions. One commitment to access and dignity.

OTG and its team bring hard-won domain knowledge across three demanding areas of care — combining patient understanding, clinical awareness and policy reach to advance recognition, therapy access and support.

Rare disease · Neuromuscular

Spinal Muscular Atrophy

A genetic neuromuscular condition where early diagnosis and timely therapy change lives. OTG advocates for awareness, screening and access — carrying the SMA community's needs to the stakeholders who shape policy.

Rare disease · Bleeding disorder

Haemophilia

A lifelong bleeding disorder requiring reliable access to care and treatment. OTG works to strengthen recognition, care pathways and support for patients and families living with haemophilia across India.

Serious illness · Supportive care

Cancer Care

Cancer demands coordinated, compassionate support across the whole journey. OTG extends its care and advocacy expertise to patients and families — helping navigate treatment, access and the practical realities of living with a serious diagnosis.

Advocacy in action

From awareness to tangible policy change

Our advocacy is measured not in noise, but in outcomes — recognition secured, officers appointed, initiatives launched, and engagement built across the nation.

Government of India

Engaging national policy at the highest level

OTG's work on Rare Health Diseases has been carried into the Rajya Sabha, and key recommendations submitted to the Hon'ble Union Health Minister of India — contributing to tangible advancements in how rare diseases are recognised and addressed at the national level.

Reach across states

A footprint spanning states, in public-private-partnership mode

PuducherryHealth Connect Initiative, in government partnership

ManipurNodal Officer for Rare Diseases appointed

KarnatakaRare-disease advocacy & stakeholder engagement

TelanganaAdvocacy & senior-level engagement

Andhra PradeshAdvocacy & stakeholder engagement

GujaratAdvocacy & stakeholder engagement

Milestones

Outcomes that endure

Rajya Sabha · New Delhi

Raised in Parliament

OTG's work on Rare Health Diseases has been carried into national policy discussion in the Rajya Sabha, bringing the concerns of the SMA and Haemophilia communities to the highest legislative forum.

Union Ministry of Health

Recommendations to the Health Minister

Key recommendations were submitted to the Hon'ble Union Health Minister of India, contributing to tangible advancements in how rare diseases are recognised and addressed.

Manipur

A Nodal Officer for Rare Diseases

OTG's efforts were instrumental in the appointment of a dedicated Nodal Officer for Rare Health Diseases in Manipur — a concrete, lasting step toward coordinated state-level care.

Puducherry

The Health Connect Initiative

Delivered in partnership with the government, the Health Connect Initiative demonstrates advocacy translated into an operating programme on the ground.

How we advocate

A disciplined path from need to national action

The same method underpins every campaign — patient, evidence-led, and connected at the highest levels.

Listen

Understand the lived reality of patients, families and clinicians — the true unmet need behind each condition.

Frame the case

Turn that need into a clear, evidence-based case that decision-makers can act on.

Reach the top

Use trusted, senior-level access across government and institutions to secure a genuine hearing.

Steward the outcome

Stay with each initiative — in PPP mode — until recognition becomes real, delivered change.

Beyond advocacy

Advocacy grounded in real care

Our policy work is credible because it is rooted in service. Alongside advocacy, OTG delivers hands-on support to senior citizens and families — the everyday care that keeps us close to the needs we champion.

24/7 Emergency SupportRapid response, any hour

Home & Nursing CareAttendants, doctors, physiotherapy

Cardiac & WellnessSpecialist support at home

Medical EquipmentRental & bed support

NRI ServicesCare for families abroad

Engagement & CounsellingCompanionship and guidance

Join the cause

Partner with us to give rare diseases the voice they deserve.

Whether you are a patient family, a clinician, an institution or a policymaker, OTG welcomes partners who share our commitment to awareness, access and dignity of life. Let's make a wish, and get it done.

Get in touch